Marfan Syndrome is a life threatening disorder and an early, accurate diagnosis of this disorder is vital.
Treatment Options...
There are many treatment options that are essential for individuals diagnosed with Marfan Syndrome, as the disorder causes many defects upon different systems. Those with Marfan Syndrome are highly recommended to have annual checkups as well as receive treatment from a multifaceted medical group consisting of a cardiologist, geneticist, ophthalmologist, orthopedist and cardiothoracic surgeon.
Skeletal Problems (Scoliosis, etc)- Monitor, Brace or perhaps surgery
Flat Feet- Orthotics and arch supports Troubles with Aorta- Medication (beta blockers, Angiotensin II, etc), Surgery, yearly echocardiograms to monitor the status of the aorta |
Vision Problems- Surgery or specified treatment by ophthalmologist (eyeglasses, artificial lens, etc)
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Additional Information:
Individuals with Marfan's Syndrome are highly advised against participating in contact sports as well as demanding forms of exercise. In addition, those with Marfan Syndrome are not to consume any form of caffeine or certain medications. Individuals with Marfan's Syndrome will be given their specific requirements from their medical team.